I am a freelance front-end web developer with extensive CMS integration experience. I have primarily worked with ExpressionEngine, but am comfortable with other systems as well. Current and past clients include Perlstein Lab, ProPublica, IDEO and Orion Magazine. I worked for Solspace for many years, managing client projects and a team of developers for some of that time. I enjoy strong, long-lasting relationships with clients.
I also run the M-CM Network, a rare disease non-profit. The M-CM Network was formed with the goal of creating a longitudinal registry for M-CM patients in order to accelerate research about the condition and transfer the knowledge of the patient community to medical researchers and practitioners.
Writing
- Phenotype with a side of genotype, please: Patients, parents and priorities in rare genetic disease in Applied & Translational Genomics
- Interview with Who Needs Access? about open access to scientific literature and the role of advocacy organizations in research.
- What's in a (disease) name? on e-patients.net
- Nomenclature in Macrocephaly–Capillary Malformation Syndrome in American Journal of Medical Genetics